They say everything happens for a reason…but sometimes I’m not sure why.Some things are clear as day,you meet people,learn certain lessons and grow as a person from those situations,but then sometimes bad things happen. Sometimes bad things happen to good people.My mom is very sick right now. She has cirrhosis which is scarring of the liver. Livers are usually able to regenerate themselves, but with cirrhosis that is not a possibility.
Why does my mom have cirrhosis? She was never an alcoholic. (Which is normally the main cause of cirrhosis)She is such a good person. Always worked her ass off. Did the best she could raising me on her own. She’s very social. Loves to talk! Loves to cook! And now she’s just laying there in a hospital bed.It breaks my heart to see her just laying in the hospital bed. Even when she’s home she’s just in bed. She goes through very few bursts of energy where she’ll whip up an amazing meal or will try to clean up the house but for the most part she just lays in bed. Sometimes she watches TV.She cries a lot. She wonders why she’s going through all this turmoil. I wonder why too..Some days she’s so full of hope and thinks that maybe she’ll get lucky and actually receive a liver transplant but then reality and statistics kick in. Getting a transplant is not easy.
We’re hopeful that she’ll get a liver transplant, but if she doesn’t her life expectancy isn’t very long. It really breaks my heart that she is going through this. She’s on the transplant list but as of now it’s just a waiting game. I’ve also had to start attending these liver transplant seminar classes since I’ll be the one caring for her if and when she does receive a transplant.I was surprised at the amount of people in my class. There are so many people who need transplants.I’ve learned a lot in the 2 seminar classes I have attended so far. Another option is getting a ‘live donor’. As I mentioned briefly before, the liver has the ability to regenerate its self. So if you were to donate a portion of your liver it would grow back. If I ever have health insurance again in the near future (don’t even get me started on health insurance!),I would definitely consider getting evaluated to see if I could possibly donate a portion of my liver to my mother. However, since I’m pretty much the only person able to care for my mom, the liver team isn’t too keen on me becoming a live donor.
My mom has had cirrhosis for a few years now and it has obviously gotten worse over the years. This past year has been the worse by far. So many trips to the hospital. On top of that my mom hasn’t worked for a little over a year now since her condition has worsened. We applied for her to get social security disability income but she was denied. The reason? Her condition isn’t that bad for her NOT to be working. Are you freaking kidding me?! We filed an appeal immediately and are awaiting a court date. I really hope that all gets settled soon.I’ve been the one caring for her financially and it’s been very hard. Even though she has health insurance (finally) there have been times where I’ve had to shell out $200+ on prescriptions for her. So I really hope she gets the money she deserves. She’s worked hard for so many years. It’s not like she’s trying to free load off of the government like so many people.
Even though life is a bit rough right now, I’m trying my hardest to stay positive.I need to stay positive.I feel like you get the energy you give. Things do end up falling into place eventually..
Has anyone gone through a similar experience? How did you deal with it all?